Friday, March 12, 2010

I am cancer-FREE baby

I think I knew all along that the cancer had gone, but it is comforting to get the scientific confirmation.

After my last traumatic chemo episode, I just knew I couldn't do it anymore. It didn't feel like a brattish thing of "not wanting to play anymore", it felt like a nagging thought and tummy thing. I prayed about it. The next morning I demanded the answer and all I got was "listen to your feelings".

My feelings indicated that every time I thought about chemo my stomach would literally turn and I felt this doom and gloom - like a total separation and disconnection from life and God. It was lonely. Everything was being affected, especially my other recovery, which is my number 1 priority in life. Even though I have thus far not missed a day of work and/or other responsibilities, my life becomes totally unmanageable when I am on chemo, particularly in the head. This is extremely dangerous for my other recovery.

When I thought about not doing chemo I got that butterfly effect in my tummy of hope - my faith felt stronger. I got excited about knowing that I would need to replace chemo with a lifestyle change. I would need to make a new commitment to my life. Being demotivated to exercise, eat properly, etc is no longer an option for me. It rather excites me, especially as there would be the added benefit of losing weight and feeling energetically great.

But this did not feel like the answer I was looking for, it seemed to be a conveniently easy and logical way to think. Then that same morning Hil and I got talking. The kind of talking where one thing leads to another and before I knew it we were addressing old hurts in our relationship. Stuff that has never really been easy for me to talk about, especially as I was mostly responsible for all the hurts. It was a good talk and when she left the room to make our morning tea, I got this overwhelming emotion and began to cry. Then quite by surprise I got the thought "the door has NOW opened to your healing". There was the answer I was demanding and I knew it without a shadow of a doubt.

I have known for a while now that my addictions progressed mostly due to my inability to express my emotions and feelings as well as to get rid of the shame caused by the continuing cycle - you know - feel bad, drown it, behave bad, hurt others and myself, feel bad ... and start the cycle all over again as an attempt to get away from it all. I also know that cancer in the breast is indicative of some form of nurturing and parenting. Not necessarily me and my mother or me and Jordan, it could also be me and ME. You know, the responsibility of looking after myself in a motherly nurturing way.

Then it was brought to my attention by another specialist that when one stops the booze or drugs and hasn't quite learned yet how to express those things that one is trying to escape from, it has to come out in another way. Hence my breast cancer! It's all very much a wake up call for me actually and the awareness of it all is quite liberating.

I never really wanted to do chemo as I knew I would include and go the alternative route as well, but I felt almost obliged to go the scientific route, especially after being chastised by doctors of "what university did you go to that gives you the knowledge to make such a decision!!"

I really don't believe it is an irresponsible decision that I have made as I was merely on preventative treatment - my nodes were all clear. If I had lung cancer or brain cancer or if the nodes were positive, that to me would be irresponsible.

My new oncologist wouldn't allow me to stop chemo unless my bone scans were clear. So after a 20-minute full bone scan with enough nuclear stuff in me to light up any airport check-in, I did all the remaining tests and PASSED THEM ALL with no sign of spread.

Basically what this means is that if I do continue with the full recommended treatment the stats would be a 20% chance of relapse and a 2% chance of dying. Stopping the chemo now the stats = 24% relapse, 2% dying. The extra 4% does not warrant the separational pain and anxiety that the treatment causes. Like I have said before, I have more chance of getting hit by a bus.

I do however have to do the radiation and hormone therapy. There was no negotiation there. This starts next week every day for 7 weeks and then 5 years of hormone therapy, which is basically just a pill. It is not the administering of the therapy that is the problem, but the effects and risks that is causes that is a bit freakish. The high risk of uterus cancer will be sorted with a hysterectomy though.

Unlike my old oncle - my new oncologist has explained in detail the effects I can expect with radiation. Everything by the right boob - skin, breast tissue, muscle, bone and lung will be effected, but it all should heal within a year.

I actually asked her why does nothing get done or changed unless it is challenged. Like interest rates at the bank or negotiating a car deal - unless you ask, you won't get it, because you simply don't know it is available. I asked her why is it the same with health issues? Her explanation was that they have a successful recipe that works for a fair amount of patients - and there would be no real need to change it unless it is challenged. I think challenging is good then as it gives them a new angle to look at if successful - that is if you are prepared to take the risk.

My new oncologist is really a breath of fresh air - she emailed me the minute she got my bone results. She also doesn't have a problem showing her human-ness - like when I showed my appreciation for her email, her reply was simply a big X ... !! Why do chicks do things so differently and not feel threatened by it?

So it is all good and I got to show my gratitude with an opportunity of helping out a friend in need.

The only thing that is still bugging me is why do they have bibles in all the oncology rooms and scanning places?? They are so prominently displayed, and the likelihood of someone having the time to pick it up and get the full intended message is rare. Perhaps it is an attempt to remind the patient that faith too is needed!! Actually, come to think of it - could this be a bit of admitting that not all knowledge can be gained from university?

Okay I am off now to grow my hair (.)(.)

3 comments:

  1. Pictures of the NEW THICK head of hair is to follow hey ... I think we're all going to be jealous - lol
    I did comment on FB - but again - this is absolutely fantastic news. Does this mean the end of your blog now???

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  2. They reckon it will take a good year for the hair to be back to normal, so still have to do the shave thing for a while coz it is not growing all over, only the top - and a mohican doesn't quite suit me. I reckon that I still have a lot to go through (radiation, etc) as well as a lot of experiences, insight and new found wisdom perhaps. So will still make a post from time to time - cancer-free doesn't mean my teaching has stopped so watch this space ... What's going on with you Sharon, you haven't let me know yet?

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